HORIZONS was established, co-ordinated and executed by the Centre for Psychosocial Research in Cancer (formerly Macmillan Survivorship Research Group). The primary objective of HORIZONS is to understand the long-term experiences of living with and beyond cancer.
Thousands of people across the UK took part. HORIZONS was guided by people affected by cancer (HORIZONS User Reference Group), internationally renowned experts, charities and public bodies (through the HORIZONS Strategic Advisory Group and HORIZONS Tumour Specific Expert Panels).
HORIZONS is a powerful bank of health, social and wellbeing information from diagnosis and in the years following treatment.
The Significance & Value of HORIZONS
- An established and committed participant community across the UK
- A unique and comprehensive dataset including clinical, sociodemographic and psychosocial data captured from the same people, from diagnosis and over time
- Multi-disciplinary team expertise provided by the Centre for Psychosocial Research in Cancer: CentRIC
- A strong collaborative network of clinical, academic, charity, policy, patient & public partners
- Opportunities for collaboration and future research
- Consent for data sharing and data linkage with national databases
- Capturing important data to understand the impact of significant events (e.g. the COVID-19 pandemic).
- Designed with impact in mind and directly informing healthcare service design and delivery, and intervention innovation
HORIZONS is helping reshape healthcare services and support, improving the lives of people diagnosed with cancer. Data from HORIZONS are being used to transform services, information and policy.
If you have any questions please contact us via Centric@soton.ac.uk.